Fiche publication
Date publication
janvier 2019
Journal
Health and quality of life outcomes
Auteurs
Membres identifiés du Cancéropôle Est :
Dr FOHRER Cécile
Tous les auteurs :
Forestier B, Anthoine E, Reguiai Z, Fohrer C, Blanchin M
Lien Pubmed
Résumé
Living with a chronic disease often means experiencing chronic treatments and regular multidisciplinary monitoring as well as a profound life-changing experience which may impact all aspects of a patients life. The patient experience of chronic disease is frequently assessed by patient reported measures (PRMs) which incorporate patients perspectives to better understand how illness, treatment and care impact the entirety of a patient's life. The purpose of this review was to collect and review different kinds of available PRM instruments validated for chronic patients, to produce an inventory of explored concepts in these questionnaires and to identify and classify all dimensions assessing chronic patients experience.
Mots clés
Chronic illness, Patient experience, Patient reported experience measures, Patient reported outcome measures, Patient-centered care, Systematic review
Référence
Health Qual Life Outcomes. 2019 Jan 21;17(1):19
