Fiche publication
Date publication
février 2018
Journal
La Revue de medecine interne
Auteurs
Membres identifiés du Cancéropôle Est :
Dr DEVILLIERS Hervé
Tous les auteurs :
Devilliers H, Vernier N, Muller G, Turcu A, Samson M, Bielefeld P, Besancenot JF
Lien Pubmed
Résumé
Systemic lupus erythematosus (SLE) is a chronic disease that considerably hampers patient's daily living. Qualitative studies with patients' interviews have been conducted to describe the experiences and perspectives of adults living with SLE. Among existing generic and disease-specific quality of life (QOL) questionnaires, none succeeded to exhaustively measure patient's preoccupations. However, these tools are useful to quantify the burden of the disease. Social precariousness, socioeconomic status and education level are intimately correlated to QOL measures, either generic or disease-specific. Musculoskeletal disease activity is also associated with a lower QOL. Using disease-specific tools may be useful because of a better aptitude to record an improvement in health status. Moreover, using generic and disease-specific questionnaires together may help to identify factors associated with a lower quality of life but not related to SLE from the patient's perspective (such as smoking or obesity). Developing new ways of recording QOL data in the future may help to evaluate the real benefit of using QOL scales in daily practice.
Mots clés
Lupus érythémateux systémique, Patient reported outcomes, Quality of life, Qualité de vie, Systemic lupus erythematosus
Référence
Rev Med Interne. 2018 Feb;39(2):107-116
