Fiche publication
Date publication
mars 2019
Journal
Respiratory research
Auteurs
Membres identifiés du Cancéropôle Est :
Pr BONNIAUD Philippe
Tous les auteurs :
Witt S, Krauss E, Barbero MAN, Müller V, Bonniaud P, Vancheri C, Wells AU, Vasakova M, Pesci A, Klepetko W, Seeger W, Crestani B, Leidl R, Holle R, Schwarzkopf L, Guenther A
Lien Pubmed
Résumé
Idiopathic pulmonary fibrosis (IPF) is a rare disease with a median survival of 3-5 years after diagnosis with limited treatment options. The aim of this study is to assess the psychometric characteristics of the Short Form 36 Health Status Questionnaire (SF-36) in IPF and to provide disease specific minimally important differences (MID).
Mots clés
Idiopathic pulmonary fibrosis, Patient-reported outcome, Quality of life, Rare diseases
Référence
Respir. Res.. 2019 Mar 1;20(1):47