Fiche publication


Date publication

mars 2019

Journal

Respiratory research

Auteurs

Membres identifiés du Cancéropôle Est :
Pr BONNIAUD Philippe


Tous les auteurs :
Witt S, Krauss E, Barbero MAN, Müller V, Bonniaud P, Vancheri C, Wells AU, Vasakova M, Pesci A, Klepetko W, Seeger W, Crestani B, Leidl R, Holle R, Schwarzkopf L, Guenther A

Résumé

Idiopathic pulmonary fibrosis (IPF) is a rare disease with a median survival of 3-5 years after diagnosis with limited treatment options. The aim of this study is to assess the psychometric characteristics of the Short Form 36 Health Status Questionnaire (SF-36) in IPF and to provide disease specific minimally important differences (MID).

Mots clés

Idiopathic pulmonary fibrosis, Patient-reported outcome, Quality of life, Rare diseases

Référence

Respir. Res.. 2019 Mar 1;20(1):47