Outcomes for clinical trials involving adults with chronic kidney disease: a multinational Delphi survey involving patients, caregivers, and health professionals.

Fiche publication

Date publication

janvier 2024

Journal

Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association

Auteurs

Membres identifiés du Cancéropôle Est :
Pr ROSSIGNOL Patrick

Tous les auteurs :
Matus Gonzalez A, Evangelidis N, Howell M, Jaure A, Sautenet B, Madero M, Ashuntantang G, Anumudu S, Bernier-Jean A, Dunn L, Cho Y, Cortes Sanabria L, de Boer IH, Fung S, Gallego D, Guha C, Levey AS, Levin A, Lorca E, Okpechi IG, Rossignol P, Scholes-Robertson N, Sola L, Teixeira-Pinto A, Usherwood T, Viecelli AK, Wheeler DC, Widders K, Wilkie M, Craig JC,

Lien Pubmed

https://www.ncbi.nlm.nih.gov/pubmed/38236705

Résumé

Many outcomes of high priority to patients and clinicians are infrequently and inconsistently reported across trials in CKD, which generates research waste and limits evidence-informed decision making. We aimed to generate consensus among patients/caregivers and health professionals on critically important outcomes for trials in CKD prior to kidney failure and the need for kidney replacement therapy, and to describe the reasons for their choices.