Fiche publication
Date publication
juillet 2024
Journal
La Revue de medecine interne
Auteurs
Membres identifiés du Cancéropôle Est :
Pr BONNOTTE Bernard
Tous les auteurs :
Moulis G, Michel M, Bonnotte B, Godeau B, ,
Lien Pubmed
Résumé
The CARMEN-France registry is a prospective, multicenter registry in France including adult patients with a new diagnosis of immune thrombocytopenia or of autoimmune immune hemolytic anemia (2402 patients included in December 31, 2023). The recording of clinical, biological and treatment data allows detailed epidemiological and pharmacoepidemiological real-world studies. This review summarizes the CARMEN-France registry protocol, gives examples of studies conducted in the registry, and indicates future directions such as inclusion of patient reported outcomes, linkage with the French national health insurance database and linkage with other registries in Europe.
Mots clés
Anémie hémolytique auto-immune, Autoimmune immune hemolytic anemia, Données de vraie vie, Epidemiology, Immune thrombocytopenia, Pharmaco-épidémiologique, Pharmacoepidemiology, Postmarketing evaluation, Purpura thrombopénique immunologique, Real-world data, Real-world evidence, Registres, Registry, Épidémiologie, Évaluation post-marketing
Référence
Rev Med Interne. 2024 07 2;:
