Fostering patients' participation in oncology research by developing psychological empowerment and a sense of community.

Fiche publication

Date publication

octobre 2024

Journal

Journal of epidemiology and population health

Auteurs

Membres identifiés du Cancéropôle Est :
Dr DABAKUYO-YONLI Sandrine , Pr GUILLEMIN Francis , Mme PARNALLAND Sophie

Tous les auteurs :
Bauquier C, Pannard M, Andrin A, Biaudet J, Parnalland S, Dabakuyo S, Guillemin F, Paret G, Jacob G, Préau M,

Lien Pubmed

https://www.ncbi.nlm.nih.gov/pubmed/39481338

Résumé

A "patient-researcher" training intervention was designed to improve participants' empowerment by building on their level of critical health literacy and to build a trustful partnership between participants and researchers, with the longer-term objective of co-constructing a community-based research project. The participants in the training intervention were recruited through the collaborative research platform "Seintinelles". This training intervention was aimed at patients or former patients suffering from cancer. The study's objective is to identify intervention's elements that appear to be relevant and those that should be improved for future implementation.