Fiche publication
Date publication
décembre 2024
Journal
Bulletin du cancer
Auteurs
Membres identifiés du Cancéropôle Est :
Dr VIGNOT Stéphane
,
Mme DIOURI Loubna
Tous les auteurs :
Diouri L, Barbe C, Vignot S
Lien Pubmed
Résumé
Care quality assessment emerged in the late 1990s, leading to the integration of users into healthcare systems. To integrate patient perceptions, resources such as PROs (Patient Reported Outcomes), PROMs (Patient-Reported Outcome Measures), satisfaction and patient experts or partners have been developed. PREMs (Patient-Reported Experience Measures) have recently emerged, bringing a fresh perspective to improving quality and care pathways, but are still little-known. The aim of this study is to carry out a critical analysis of available publications on tools for evaluating the patient's experience of the care pathway for a chronic disease, with a focus on oncology, and to identify common themes. A literature search was carried out from June 2023 to March 2024. It focused on the concepts of quality of life, satisfaction and patient experience. Seventy-nine articles related to patient experience were identified, including 44 in oncology and 35 outside oncology. The measures analyzed include experience questions as well as satisfaction questions and/or PROMs measures. Nevertheless, they address concordant domains that are important to the patient. This study has shown a consistent development of PROMs and patient satisfaction. PROMs and patient experience are still new. Their use remains focused on targeted stages of care, and there is a lack of tools for assessing the patient's care pathway more globally.
Mots clés
Cancer, Care pathways, Chronic diseases, Oncologie, Oncology, PREMs, PROMs, Parcours de soins, Pathologies chroniques, Patient centered care, Patient-reported experience measures, Patient-reported outcome measures, Soins centrés sur le patient
Référence
Bull Cancer. 2024 12 30;:
