Implementation of patient-reported outcome measures in a heart transplant recipient registry: First step toward a patient-centered approach.

Fiche publication

Date publication

août 2022

Journal

Clinical transplantation

Auteurs

Membres identifiés du Cancéropôle Est :
Pr GUILLEMIN Francis

Tous les auteurs :
Mahmoudi R, Moitie T, Dorent R, Guillemin F, Couchoud C

Lien Pubmed

https://www.ncbi.nlm.nih.gov/pubmed/35644026

Résumé

Heart transplantation (HTX) is a well-established treatment for suitable patients with end-stage heart failure, intended to prolong their survival and improve their health-related quality of life (HR-QoL). No international consensus exists, however, about the preferred patient-reported outcomes (PROs) and their measures (PROMs) for heart transplant recipients. The purpose of this study, the first step in a mixed-method investigation, was to review the PROMs developed and used in this population to identify the instruments for measuring HR-QoL and adherence to immunosuppressive medications most appropriate for heart transplant patients.