Fiche publication
Date publication
mai 2015
Auteurs
Membres identifiés du Cancéropôle Est :
Pr JOLLY Damien
Tous les auteurs :
Rapin A, Drame M, Jolly D, Novella JL, Mahmoudi R, Toussaint-Thorin M, Boyer FC
Lien Pubmed
Résumé
BACKGROUND: Quality of life is a subjective point of view of the patient. Its measurement is complex, but useful to personalize interventions and to evaluate the effect of care, particularly in Physical medicine. AIM: to determine the psychometric properties of the Duke Health Profile (DHP) in neuromuscular disease. This instrument was chosen for its excellent acceptability and its ability to evaluate ten dimensions in a short administration. STUDY DESIGN: prospective mutlicentre study. SETTING: Neuromuscular patients in centers in Reims, Dijon and Besancon. POPULATION: patients over 18 years with neuromuscular disorders. METHODS: Successive inclusion between 2002 and 2005. DHP administration on two occasions, 15 days apart. Collection of socio-demographic data. Statistical analyses using SAS SOFTWARE 9.3. RESULTS: 139 patients were included. The acceptability of the DHP was excellent. The disability dimension showed marked ceiling effect. Reliability was acceptable (Cronbach = 0.54 - 0.73, except for the social health dimension (0.40), ICC = 0.55 - 0.83). The anxiety and depression dimensions had discriminant properties in distinguishing patients with different functional status. CONCLUSION: The DHP is suitable and valid for patients with neuromuscular disease, with some reservations for the social health and disability dimensions. CLINICAL REHABILITATION IMPACT: This tool can be used in daily clinical practice and in research. This tool can be used in daily clinical practice and in research.
Référence
Eur J Phys Rehabil Med. 2015 May 19.
