Exploring quality of life in people with slowly-progressive neuromuscular disease.
Fiche publication
Date publication
juin 2017
Journal
Disability and rehabilitation
Auteurs
Membres identifiés du Cancéropôle Est :
Pr JOLLY Damien
Tous les auteurs :
Dany A, Rapin A, Réveillère C, Calmus A, Tiffreau V, Morrone I, Novella JL, Jolly D, Boyer FC
Lien Pubmed
Résumé
A qualitative work is conducted to enable later the construction of a health-related quality of life (HRQL) questionnaire for patients with slowly-progressive neuromuscular disease (NMD) such as myopathies and muscular dystrophies.
Mots clés
Focus group, neuromuscular disease, patient-reported outcome, qualitative study, quality of life
Référence
Disabil Rehabil. 2017 Jun;39(13):1262-1270