Validation of the "Good2Go": the first French-language transition readiness questionnaire.
Fiche publication
Date publication
septembre 2019
Journal
European journal of pediatrics
Auteurs
Membres identifiés du Cancéropôle Est :
Dr DEVILLIERS Hervé
Tous les auteurs :
Mellerio H, Jacquin P, Trelles N, Le Roux E, Belanger R, Alberti C, Tubiana-Rufi N, Stheneur C, Guilmin-Crépon S, Devilliers H
Lien Pubmed
Résumé
The use of transition readiness questionnaires is strongly recommended in adolescents with chronic conditions. The aim of our study was to validate "Good2Go," the first French-language transition readiness questionnaire. We analyzed the data from 2 multicentric studies (Canada and France) involving adolescents with chronic conditions (type 1 diabetes, inflammatory bowel disease, cystic fibrosis, epilepsy, juvenile idiopathic arthritis). Content and construct validity were examined using factorial and Rasch analysis (structural validity), Spearman's correlation, and Mann-Whitney test (external validity). Cronbach's α and intra-class correlation coefficients explored reliability. Cognitive interviews assessed wording comprehension and item appropriateness. Good2Go was completed by 321 participants (boys = 51%; mean age = 16.4 years (standard deviation = 1.5; min = 14.0; max = 18.0); Canada = 51.1%). Factor analysis identified 3 domains: "health self-advocacy," "knowledge about chronic conditions," and "self-management skills." The 3-domain structure showed a satisfying Rasch fit, internal consistency, and test-retest reliability. Good2Go domain scores were significantly higher in participants over 17 years of age, indicating satisfactory external validity.Conclusion: Good2Go is a valid 20-item questionnaire to assess transition readiness in adolescents with chronic conditions and may be useful in routine care to propose individually tailored preparation for their transfer to adult healthcare. Further research is now needed to analyze correlation between domain scores and success of transition. What is Known: • In adolescents with chronic conditions, the use of transition readiness questionnaires is recommended to propose individually tailored preparation for their transfer to adult healthcare. • However, no French-language questionnaire has been so far validated. What is New: • Based on a complete validation methodology, this study highlights that the French-language 20-items Good2Go questionnaire has good psychometric properties. • It explores all transition key points though 3 scored domains: "health self-advocacy", "knowledge about chronic disease" and "self-management skills".
Mots clés
Adolescent, Chronic condition, Chronic disease, Patient-reported outcomes, Psychometric proprieties, Tools validation
Référence
Eur. J. Pediatr.. 2019 Sep 13;: