Fostering patients' participation in oncology research by developing psychological empowerment and a sense of community.
Fiche publication
Date publication
octobre 2024
Journal
Journal of epidemiology and population health
Auteurs
Membres identifiés du Cancéropôle Est :
Dr DABAKUYO-YONLI Sandrine, Pr GUILLEMIN Francis, Mme PARNALLAND Sophie
Tous les auteurs :
Bauquier C, Pannard M, Andrin A, Biaudet J, Parnalland S, Dabakuyo S, Guillemin F, Paret G, Jacob G, Préau M,
Lien Pubmed
Résumé
A "patient-researcher" training intervention was designed to improve participants' empowerment by building on their level of critical health literacy and to build a trustful partnership between participants and researchers, with the longer-term objective of co-constructing a community-based research project. The participants in the training intervention were recruited through the collaborative research platform "Seintinelles". This training intervention was aimed at patients or former patients suffering from cancer. The study's objective is to identify intervention's elements that appear to be relevant and those that should be improved for future implementation.
Mots clés
Community-based research, Empowerment, Health literacy, Implementation analysis
Référence
J Epidemiol Popul Health. 2024 10 30;72(6):202781